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I am writing this to provide my family and friends with access to detailed updates and progress reports on our son who was diagnosed with Sagittal Craniosynostosis. I also hope that this might be helpful to other families that are dealing with Craniosynostosis.
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I am soo thankful to that Dean has done so well! Thank you for sharing your blog site with me. LOve and Blessings! Ann House
ReplyDeleteThank you for sharing your journey with sagittal craniosynostosis!! I hope and pray that our experience is as smooth as yours has been!! - Stephanie Pryor
ReplyDeleteMy baby boy is having this surgery on Tuesday. Thanks for sharing your pictures!
ReplyDeleteLeah, I will pray for your son! What is his name?
ReplyDeleteThank you so much! His name is Henry. :)
ReplyDeleteThanks so much for posting the slide show of your son's surgery experience. I'm not finding many personal stories of parents with children with craniosynostosis, my niece has it & my sis in law does not have internet access but would like to talk to another family that has had a child go through this surgery-would you be willing to contact her or either share your phone # so she could contact you? You can email me at kookinkris@gmail.com I am from Lancaster County, PA & my sis in law & family are in Berks County.
ReplyDeleteThanks so much!
Kris