Last week, we took Dean back to John's Hopkins for his one year post-op cranial-facial clinic
appointment. The past two times that we went back to Baltimore for post-op appointments, Dean has been very upset. I'm sure it is no coincidence that my normally happy little man gets upset every time we return to the hospital where he had his surgery. I don't know how he knows, but he does. So this time, we decided to take his sisters along and make a day of it.
During the appointment, Dean still fussed, but all of the news from Dr. Ahn was great. He showed us the images from Dean's CAT Scan. He explained to us that he looks for two things- 1) the bone has fused and 2) there is space for the brain to grow. Both were able to be seen from the scan, and both were just as they should be. No more surgery for Dean! God has been so faithful to us! Dr. Ahn also took measurements, and told us that traditionally the head shape at eighteen months of age (Dean's current age) is essentially the shape we can expect his head to remain. We certainly have no problem with his head shape- he is a handsome guy. We will go back to see Dr. Ahn next year to keep measurements updated, but otherwise it looks like Dean doesn't need him anymore.
Afterwards, we took all three kids to the aquarium to make the trip (an almost three hour drive) a fun day filled with good memories for Dean. I included one photo from the day with Dean sportin' his new short hair cut that shows a little bit of what is left of his scar. I also can't resist posting a picture of him (pre-haircut) in his "Chicks dig scars" T-shirt.
Thanks so much for all of the prayers for our family!
Posts
Glad to hear a great update & happy things look well! My neice still has not had her surgery, it's been scheduled several times but canceled due to her having a cold or some other illness. :( Hoping she can soon have the surgery done & over.
ReplyDeleteI came across your blog today- thank you so much for posting your son's journey with craniosynostosis. My son was diagnosed with saggital craniosynostosis and his surgery is scheduled for Dec 20th. I feel like I have been punched in the stomach, I am a nervous wreck. Seeing that your son came through this traumatic experience with flying colors helps give me a sense of peace. I covet any prayers that you could spare for my son Caden. My email is jujay83@gmail.com and my name is Jerusha
ReplyDeleteJust a random comment from and adult with Sagittal Craniosynostosis. You did well for your child. Im 28 years old, when I was a baby there wasnt as many options for my parents. You did you child a big favor. You guys are great parents. Im on a journey to find a doctor to preform a complete reconstruction of my skull. Keep up the love for your child. He looks fine.
ReplyDeleteSteve
Thank you for this blog. We are just starting the journey and your blog has helped me understand better what to expect. In some ways, it was sobering, but I appreciate your willingness to be open with your experience. Thank you, and God bless your sweet boy.
ReplyDelete