I wanted to write a update for weeks now, but Dean just recovered so quickly that I got caught up in the hustle and bustle of life and just didn't get around to it. Dean is now 9 months old and 3 months post surgery. If you didn't know that he had the surgery, you would probably never notice his scar; it is healing so well. His blond hair has covered up most of the incision. Right now his worst scars are the wrist cuts that were made to get access to his artery for the transplant (not a normal part of the surgery if you remember.) Surgery slowed him down for about three weeks, but by week four he was rolling around on our hardwood floor with ease and comfort. He is now crawling around the house and trying to pull himself up to stand. He started doing these things a few weeks later than my older two did, but if you take into account the week he was in the hospital and the 3 weeks after that he was sore and not very mobile, he is right on track. I took him to my naturalist and he recommended that I treat the incision with a detoxifying mud to purge any impurities that might keep him from healing completely. It was messy, but Dean didn't mind. Otherwise, he found no complications or setbacks from the surgery. I am also taking him for craniolsachral therapy again, and that is going well. I can tell it is helping to release pressure and tightness from his head and neck.
It is really like nothing ever happened to him. We are so thankful for our healthy little boy. Kara, my oldest daughter, introduces him to people as "Dean Alden the Brave" and we replace the word "big" for "brave" when we play "How brave is Dean?...So Brave! He lifts his arms in the air and smiles- so cute! We are looking forward to his 6 month post-op appointment at Johns Hopkins and first birthday in October. It is just amazing how quickly the days are flying by!
I have had a number of parents who are or have dealt with craniosynostosis contact me. I am happy to know them and pray for their kids. A few of them really jumped through some hoops to find my contact info. I can be messaged through facebook and I am also a member of the CAPPSKIDS facebook page.
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